Advancing research. Inspiring hope.
The HUWE-1 Foundation unites families, clinicians, and researchers to advance scientific discovery, improve care, and accelerate the development of treatments and cures for HUWE1-related disorders.
● WHO WE ARE
621k
RAISED FOR RESEARCH
6
BIO-SAMPLES COLLECTED
96
FAMILIES REGISTERED
By coordinating research, patient data, and strategic partnerships, we are building the most direct path possible from scientific insight to future therapies.
Our Mission
● WHAT WE DO
Recruit and engage families affected by HUWE1-related neurological disorders to drive participation, representation, and scientific progress
Recruit
Collect
Develop and maintain a global biobank and data resources that enable scientists to better understand HUWE1 biology and disease.
Discover
Fund high-impact research that advances the understanding of HUWE1-related disorders and identifies potential therapeutic pathways.
Foster collaboration among families, clinicians, researchers, and industry partners to accelerate progress toward treatments.
Unite
● GET INVOLVED
Help us turn hope into discovery.
Every donation advances research, every story builds knowledge, and every connection strengthens our community.
